Community Engagement

Our Patient and Stakeholder Engagement Committee collaborates with our community resource networks to advise and support the implementation of COMPASS, provide feedback to the researchers, and recommend ways to continue COMPASS in the future. These networks will help us tell others about the COMPASS results and, if merited, how to begin similar programs across the United States.

“Building and Sustaining Community Partnerships, Interdisciplinary Collaborations, and Communications”

Bridging the gap…

The COMPASS study will provide new, standardized processes and structures of clinical care; however, routine clinical care occurs within a local context, and that local context can present unique barriers and facilitators to implementation. COMPASS community stakeholders and designated networks will work together to bridge the gap that currently exists between post-acute stroke clinical care and access to community resources. COMPASS community and stakeholder engagement actively includes the voices of patients, families, community agencies, clinicians, healthcare systems and policy makers.

Who are the COMPASS Community Resource Networks?

COMPASS Stakeholders engage local and statewide leaders and collectively serve as a driving force to effectively support the implementation of COMPASS.

COMPASS Community Resource Networks consist of leaders in their community who possess unique perspectives and knowledge, in order to provide stroke survivors with services that match their distinct set of needs.

 

Engagement is a vital way to make research…

  • Patient-centered
  • Useful to patients and providers
  • Lead to greater use of results by the larger medical community

Structure of Engagement

The COMPASS engagement structure allows us to weave engagement throughout all phases of the study. We are engaging a wide range and a large number of stakeholders –  in order to be inclusive and to leverage the tremendous expertise across the state.

Engagement will occur at…

1. State Level – Key Stakeholder Groups

2. Community Level – Community Resource Networks

Resource Networks Bubble Table

Model of Engagement

  • Invite stakeholders to participate (identify who are our stakeholders, who will be affected by changes in care delivery, who can affect changes in care delivery)
  • Include stakeholders in the research process
  • Incorporate stakeholder input into the study
  • Inform stakeholders of how we incorporated their inputEngagement Process Image

There is no sacrifice to scientific rigor by including perspectives of stakeholders.

Rather this makes the research more relevant.